Do We Look Like The Face of Alzheimer’s?

This is my 52 year old friend who has dementia, and me, 57 with Early Onset Alzheimer’s.

Yesterday, my husband and I participated in the Walk to End Alzheimer’s in Punta Gorda, FL. We were joined by my friend in the picture above, who is 52 and has dementia, as well as several friends and family member who came to support us. It was a nice day, and I made some good contacts within the Alzheimer’s Association. The Charlotte Sun newspaper interviewed me during the walk and the article was published today.

Do we look like people you would think of having dementia or Alzheimers? Of course we don’t. When we think of these diseases we think of older seniors, not people who do not even qualify for social security yet. When you go to the Post Office and ask to purchase the Alzheimer’s stamp they have a beautiful older woman on them. I think we need to change the face of Alzheimer’s. Just a few moments ago before I sat down to write this post, I read a story about a 56 year old woman who was vivacious and had everything going for her. Within 6 years she had withered away to nothing…..a senseless victim of Alzheimer’s. I am in tears as I am writing this……..I am angry, scared and afraid. I don’t want to die of this in the next 10 years, I don’t want to be a burden to my husband, and I don’t want to pass this on to my children.

The number of people they expect to have Alzheimer’s by 2050 is expected to triple and the U.S. is forecasting that Alzheimer’s will cost U.S. citizens over a trillion dollars by then. One in every nine baby boomers are expected to have it. I just went to my first Early Onset Alzheimer’s meeting in September in Florida (before season when it really gets busy here) and there were 15 of us under the age of 65 in the room. It was shocking! Also, there are 10 diseases that are responsible for the deaths of the majority of people in the world, and Alzheimer’s is one of them. It is the ONLY one that has no known cure, or medication that is effective at slowing down the progression.

The only way to address this is by additional funding by corporations, Governments and non-profit organizations. Big Pharma has no interest in finding a cure for us. It is not in their best interest to do so…..they want us to keep taking their medications. That is why I have been doing my own research and trying to get on a pathway to outstanding health in an effort to slow down the progression of this disease. See my Alzheimer’s Plan of Attack. As difficult as it is for people like me who get this disease early in life, I think it is imperative for them to come forward and share their stories. We need to change the face of Alzheimer’s. If more people see younger people getting it, I am convinced we would get additional funding for it. We have to advocate, advocate, advocate.

I am going to dedicate my life to try to change the face of Alzheimer’s and raise funds for a cure. Please join me….either by volunteering or donating. Praying for a cure in MY lifetime!

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12 thoughts on “Do We Look Like The Face of Alzheimer’s?

  1. Hi Kelly I wish I could give you a big hug or a miracle,you given all of us hope and support with our dogs and you look so young and happy. I used to work at a nursing home and there was a woman there with Alzheimer’s only 55,we do indeed to change the face of this awful disease! All the best….Glenda

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  2. A miracle is what I need, but that is unlikely but I would love a hug, or any support anyone can give me. I am trying to stay so positive but sometimes when I read some of the conditions these young people with Alzheimer’s are in, I realize that it is going to happen sooner than I think. I have to remain positive though and LIVE IN THE MOMENT. I think Duncan has given me strength to get through this. Thank you so much, Glenda. Your support means more than you know.

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  3. May God bless your journey. Life is not fair. I plan to read your blog. Live life to the fullest. My journey is also scary and unpredictable due to breast cancer. I live each day in full presence and appreciative of every moment. God bless.

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    1. Fran, thank you for your nice note. Life is not always fair, and every day I wake up I am blessed. I am sorry you are dealing with breast cancer. My sister also has it. I will pray for you and hope you are able to overcome it. Take care of yourself, and live in the moment. Hugs!

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  4. Kelly,
    You have always been, and continue to be, one of the strongest people I know. And now, I add courageous. Your honesty was moving. You have our support.

    Aurelio

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    1. Aww, thank you Aurelio, you made my day. Sometimes I don’t feel very strong, but I feel like I need to contribute while I still can. I know my time while I am fully functioning is limited so I want to make an impact. I appreciate your support. Please continue to follow my blog. I hope you are doing well. Hugs.

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  5. Kelly..good morn. My daughter who. Is a nurse she is 50. She was going to a nuro dr…he was treating her for Adhd..had on all kinds of meds wasnt getting anybetter.Her son went to her last appt told dr. Mom doesnt have adhd somethng else is wrong…long story short. Another nuro dr. Looked at mri/ct scan…told us. She has a diagn..Demtia her brain is shrinking. It is of 73 yr old..Glher being a nurse she read it in. The medical records she recieved from the first neuro.dr…This. Was just recently. In. March

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    1. Lanona, I am so sorry to hear about your daughter. I know how devastating it is to hear a family member has this, as my Mom had it and I was her caregiver. Now I was diagnosed. I would recommend you read my blog posting called My Alzheimer’s Plan of Attack and see if she could start doing some of these things to slow down the progression. Also, follow my blog for future updates, because I will be posting things that may be helpful to her. Best wishes to her and your family. Sending you a hug.

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  6. Hi Kelly,

    I am shocked. You are one of the strongest leaders I know. I can a only imagine how difficult this must be for you. Two things I know: 1. You will bulldog your mission like no other and 2. God is good. I will be praying for you.

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    1. Thank you, Gina! Your comment made me laugh. You know me well, I am a bull dog, and I am not going to take this lightly and go down easily. I also have faith in God. I believe he gave this to me so I can learn something from it and be a voice for the Alzheimer’s cause, and try to do some good in the years I have left. I appreciate your prayers. I hope you are doing well.

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  7. God has a plan for you. Stay positive. I am sure your blog and your plan of attack will be very helpful to many others. Miracles do happen!!

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