Two steps forward, three steps back. Progress has been lost but I will overcome! I am a survivor!
On June 7, 2021 the FDA approved a drug called Aducabanumab which is manufactured by Biogen. It will be sold under the name Aduhelm. It is a monthly intravenous infusion intended to slow cognitive decline in people with mild memory and thinking problems. It is the first approved treatment to attack the disease process of … Continue reading Am I Excited About the New Alzheimer’s Drug…..Am I Going to Take It?
I continue to explore my options regarding my end of my life with Alzheimer’s . I recently met with a Death Doula…..very interesting.
I am a bit angry and frustrated at God right now. I am sure many of you are feeling the same way. I don’t have many good years of cognitive health left, and I am spending it in isolation.
The only potential Alzheimer’s drug to showed hope did not fair well at the last FDA meeting, but I am still hopeful. Read why.
Why I am flipping the bird to Alzheimer’s Disease. I’m not going down without a fight.
I thought I was just having a rough few months, and was just clumsy. I am not normally a clumsy person (although I do tend to be accident prone), but I cannot deny the fact that I have developed a new problem. It happens 90% of the time now. For some reason, I cannot get … Continue reading New Development: I Can’t Walk Through a Door Without Bumping Myself
Having had multiple experiences with Hospice, I know it’s not for me because I have Alzheimers, even though it is a fantastic service that is offered. I would prefer to do medical aid in dying.
Alzheimer’s Patients and Families make the most effective Alzheimer’s advocates and fundraisers.
This Alzheimer’s patient has pre-planned my funeral, so my loved ones don’t have to.