Two Steps Forward, Three Steps Back
Two steps forward, three steps back. Progress has been lost but I will overcome! I am a survivor!
Am I Excited About the New Alzheimer’s Drug…..Am I Going to Take It?
On June 7, 2021 the FDA approved a drug called Aducabanumab which is manufactured by Biogen. It will be sold under the name Aduhelm. It is a monthly intravenous infusion intended to slow cognitive decline in people with mild memory and thinking problems. It is the first approved treatment to attack the disease process of … Continue reading Am I Excited About the New Alzheimer’s Drug…..Am I Going to Take It?
I Need to Set Boundaries/Know my Limitations
I have recently realized I am no longer Super Woman. My Alzheimer’s disease and other health problems have forced me to re-examine my priorities and understand my limitations.
Conversations with A Death Doula: Exploring my Options with Alzheimer’s
I continue to explore my options regarding my end of my life with Alzheimer’s . I recently met with a Death Doula…..very interesting.
A Good Cry=A Refreshed Outlook on Life
I have had my good cry and now I am feeling refreshed and renewed despite my Alzheimer’s !
Update on My Fight to Die with Dignity with Alzheimers
An update regarding my research regarding Medically Aid in Dying with Alzheimers/Death With Dignity.
Looking Forward to 2021 Despite Alzheimers
2020 is coming to a close, and I am looking forward to living in the moment in 2021. With Alzheimer’s it’s difficult to focus on the future.
I am Angry at God
I am a bit angry and frustrated at God right now. I am sure many of you are feeling the same way. I don’t have many good years of cognitive health left, and I am spending it in isolation.
The Latest Alzheimer’s Drug Trial Was Not Successful But I’m Still Hopeful!
The only potential Alzheimer’s drug to showed hope did not fair well at the last FDA meeting, but I am still hopeful. Read why.
Raising my Middle Finger Proudly In the Air As I Fight Alzheimers
Why I am flipping the bird to Alzheimer’s Disease. I’m not going down without a fight.
Celebrating A Pretty Good Cognitive Year! Happy 59!
It’s been a good cognitive year! Happy Birthday to me!
My Over Communicating Mom During Early Stage of Alzheimer’s
Have you ever had a person with dementia/Alzheimer’s overcommunicate to you?
New Development: I Can’t Walk Through a Door Without Bumping Myself
I thought I was just having a rough few months, and was just clumsy. I am not normally a clumsy person (although I do tend to be accident prone), but I cannot deny the fact that I have developed a new problem. It happens 90% of the time now. For some reason, I cannot get … Continue reading New Development: I Can’t Walk Through a Door Without Bumping Myself
My Multiple Experiences With Hospice & My End Of Life Plans
Having had multiple experiences with Hospice, I know it’s not for me because I have Alzheimers, even though it is a fantastic service that is offered. I would prefer to do medical aid in dying.
Why Alzheimer’s Patients/Families Should Fundraise and Advocate
Alzheimer’s Patients and Families make the most effective Alzheimer’s advocates and fundraisers.
Alzheimer’s To Do List: Planned my Funeral (complete)!
This Alzheimer’s patient has pre-planned my funeral, so my loved ones don’t have to.
I Had A Brain Fart All Week
I had a week long brain fart, and it has me spooked. Is this the beginning of a downward spiral for me?
I Have Alzheimer’s and I Want to Die With Dignity
I have Alzheimer’s and I want to die with dignity via euthanasia. Unfortunately, I can’t do so in the United States.
What Does Early Onset Alzheimer’s Look Like?
How can three people this young have Alzheimer’s?
Beware of This Doctor Peddling Advanced Directives for Dementia
Advance Directives for Dementia: Buyer Beware of this Scam Artist
Chuck Gaidica Interviews Me for Alzheimer’s Voices
I was interviewed by Chuck Gaidica for Alz Voices. Let’s find a cure!
I Am Donating My Brain to Alzheimer’s Research
I am donating my brain to Alzheimer’s Research. We need to find a cure.
Your Going to Hear This Alzheimer’s Patient Roar
I received the greatest compliment when my Alzheimer’s doctors said “I wish all my patients were like you”.
Thank You Alexa, for Everything
Do you have extra time on your hands due to the COVID 19 scare? You can put your time to good use by implementing my Alzheimer’s copying strategy to get organized.
My Wedding Vow Blues
My husband got more than he bargained for when he married me five years ago, and now I have Alzheimer’s.
Renewing My Faith In God
I am renewing my faith in God even though I have felt abandoned by him. Not today Alzheimer’s !
My Coronavirus Retreat
The whole world is in the midst of the Coronavirus and many people are finding it very difficult to do social distancing and self-isolation. We have been self-quarantining for 3 weeks now, only going to the grocery store twice. These tumultuous times can create fear, anxiety, panic, loneliness, and depression. None of these things are … Continue reading My Coronavirus Retreat
Husband 101 Training: Preparing Him to Take Over the Household
We are implementing Husband 101 Training so he can take over our household when my Alzheimer’s progresses.
Putting My End Of Life Plans in Place: Very Emotional
I have been told to put my final end of life plans in place. It sucks.
Capturing My Memories For The Future When I Can’t Remember
I am documenting my memories now for when I can’t remember them in the future and also for future generations.
Coping Strategy: Technology Can Be a Valuable Tool for Alzheimer’s Patients
Technology can provide many copying strategies for an Alzheimer’s patient to help them function more easily.
Sobering Advice From My Doctor
I got a punch in the gut from my doctor. My doctor is encouraging me to reevaluate my priorities. She is right.
My Bucket List
Stop Dreaming About Your Bucket List And Start Living It
My Husband Passed MY Memory Test!
My husband passed my memory test for me. At least one of us can remember.
Why My Alzheimer Blog Is Not Visually Appealing
Please think before you criticize someone with Alzheimer’s dementia. We probably are doing the best we can do!
The Day I Started To Live Like I Was Dying
In 2010 the trajectory of my life changed and I started to live like I was dying.
The Cake Fairy Delivered Yesterday!
An incredibly kind person did something so nice for me to cheer me up. There are angels here on earth.
Holy Cow, Mom. Put Some Clothes On!
The beginning of my Mom’s decline with Alzheimer’s disease.
My Latest Alzheimer’s Doctor Appointment: My Prognosis Looks Bleak
My Alzheimer’s Doctor Appointment Did Not Go Well
My Cobweb Strategy for Clearing my Brain
My cobweb strategy for clearing my brain.
My Alzheimer’s “Business” Plan
I worked for 31 years for a large Corporation. Most of those years were spent in Leadership positions doing Project Management and Business Planning. As any of my co-workers, friends and family will tell you, I am probably one of the most organized and methodical people anyone has ever seen. I plan everything and attack … Continue reading My Alzheimer’s “Business” Plan
Welcome To My Early Onset Alzheimer’s Blog
On December 22, 2018 I was diagnosed with Early Onset Alzheimer’s at 57 years old. It didn’t come as a complete surprise, because my mother and other family members had Alzheimer’s or dementia. I also had genetic testing which showed I had two APOE4 genes. My husband and I had been noticing that things were … Continue reading Welcome To My Early Onset Alzheimer’s Blog
Living My Best Life With Alzheimer’s 