Two steps forward, three steps back. Progress has been lost but I will overcome! I am a survivor!
On June 7, 2021 the FDA approved a drug called Aducabanumab which is manufactured by Biogen. It will be sold under the name Aduhelm. It is a monthly intravenous infusion intended to slow cognitive decline in people with mild memory and thinking problems. It is the first approved treatment to attack the disease process of … Continue reading Am I Excited About the New Alzheimer’s Drug…..Am I Going to Take It?
I have recently realized I am no longer Super Woman. My Alzheimer’s disease and other health problems have forced me to re-examine my priorities and understand my limitations.
I continue to explore my options regarding my end of my life with Alzheimer’s . I recently met with a Death Doula…..very interesting.
I have had my good cry and now I am feeling refreshed and renewed despite my Alzheimer’s !
An update regarding my research regarding Medically Aid in Dying with Alzheimers/Death With Dignity.
2020 is coming to a close, and I am looking forward to living in the moment in 2021. With Alzheimer’s it’s difficult to focus on the future.
I am a bit angry and frustrated at God right now. I am sure many of you are feeling the same way. I don’t have many good years of cognitive health left, and I am spending it in isolation.
The only potential Alzheimer’s drug to showed hope did not fair well at the last FDA meeting, but I am still hopeful. Read why.
Why I am flipping the bird to Alzheimer’s Disease. I’m not going down without a fight.
It’s been a good cognitive year! Happy Birthday to me!
Have you ever had a person with dementia/Alzheimer’s overcommunicate to you?
I thought I was just having a rough few months, and was just clumsy. I am not normally a clumsy person (although I do tend to be accident prone), but I cannot deny the fact that I have developed a new problem. It happens 90% of the time now. For some reason, I cannot get … Continue reading New Development: I Can’t Walk Through a Door Without Bumping Myself
Having had multiple experiences with Hospice, I know it’s not for me because I have Alzheimers, even though it is a fantastic service that is offered. I would prefer to do medical aid in dying.
Alzheimer’s Patients and Families make the most effective Alzheimer’s advocates and fundraisers.
This Alzheimer’s patient has pre-planned my funeral, so my loved ones don’t have to.
I had a week long brain fart, and it has me spooked. Is this the beginning of a downward spiral for me?
I have Alzheimer’s and I want to die with dignity via euthanasia. Unfortunately, I can’t do so in the United States.
How can three people this young have Alzheimer’s?
Advance Directives for Dementia: Buyer Beware of this Scam Artist
I was interviewed by Chuck Gaidica for Alz Voices. Let’s find a cure!
I am donating my brain to Alzheimer’s Research. We need to find a cure.
I received the greatest compliment when my Alzheimer’s doctors said “I wish all my patients were like you”.
Do you have extra time on your hands due to the COVID 19 scare? You can put your time to good use by implementing my Alzheimer’s copying strategy to get organized.
My husband got more than he bargained for when he married me five years ago, and now I have Alzheimer’s.
I am renewing my faith in God even though I have felt abandoned by him. Not today Alzheimer’s !
The whole world is in the midst of the Coronavirus and many people are finding it very difficult to do social distancing and self-isolation. We have been self-quarantining for 3 weeks now, only going to the grocery store twice. These tumultuous times can create fear, anxiety, panic, loneliness, and depression. None of these things are … Continue reading My Coronavirus Retreat
We are implementing Husband 101 Training so he can take over our household when my Alzheimer’s progresses.
I have been told to put my final end of life plans in place. It sucks.
I am documenting my memories now for when I can’t remember them in the future and also for future generations.
Technology can provide many copying strategies for an Alzheimer’s patient to help them function more easily.
I got a punch in the gut from my doctor. My doctor is encouraging me to reevaluate my priorities. She is right.
Stop Dreaming About Your Bucket List And Start Living It
My husband passed my memory test for me. At least one of us can remember.
Please think before you criticize someone with Alzheimer’s dementia. We probably are doing the best we can do!
In 2010 the trajectory of my life changed and I started to live like I was dying.
An incredibly kind person did something so nice for me to cheer me up. There are angels here on earth.
The beginning of my Mom’s decline with Alzheimer’s disease.
My Alzheimer’s Doctor Appointment Did Not Go Well
My cobweb strategy for clearing my brain.
I worked for 31 years for a large Corporation. Most of those years were spent in Leadership positions doing Project Management and Business Planning. As any of my co-workers, friends and family will tell you, I am probably one of the most organized and methodical people anyone has ever seen. I plan everything and attack … Continue reading My Alzheimer’s “Business” Plan
On December 22, 2018 I was diagnosed with Early Onset Alzheimer’s at 57 years old. It didn’t come as a complete surprise, because my mother and other family members had Alzheimer’s or dementia. I also had genetic testing which showed I had two APOE4 genes. My husband and I had been noticing that things were … Continue reading Welcome To My Early Onset Alzheimer’s Blog